Would my blood be the answer to all the problems I’m experiencing? Are blood clots connecting the dots to heal from Long Covid?

Let’s start with a sum up: (I might change it later because summarizing is one of the hardest things to do suffering Long Covid, because memorizing my thoughts and memory, function differently ever since.)

  • I fell because the feeling in my right leg had disappeared. Now I realize why the two women who found me reacted hysterically and wanted to call an ambulance—the look on the doctor’s face in Prague…
  •  I had thinners from the doctor in Prague because I have FVL. My GP and a doctor in the hospital told me to stop. Soon, I had thrombosis for the third time.
  • Just after the diagnosis, I had massive and frightening menstrual bleeding using DOAC’s. A change of meds (Acenocoumarol) followed this.
  • Heavier menstrual bleedings and changed periods ever since. Sometimes with a lot, big clots like after giving birth. 
  • Pain in my chest, headaches for no reason, and palpitations. My GP and Haematologist told me it was stress.
  • An INR that the Thrombosis service couldn’t get stable.
  • Immense pain in my calf (September 2020), diagnosed as PTS (March 2021)
  • A strange feeling in my head (November 2020), like a balloon, snapped and fluid came out, followed by an enormous headache and hours of sleep. My GP gave me a prescription to see a Neurologist 2 months later. So I didn’t worry.
  • A few days before Christmas 2020. Backpain, so severe I was in an angel of 90 degrees, not able to move. Heavy painkillers and in bed for two weeks. The third week when I was phasing out on the meds, I was feeling sick. Headaches, fever, feeling like I got the flu. I couldn’t test, because I was possitive in November 2020. And it also could have been the meds.
  • Brainfog got worse, see the symptoms in the list below.
  • Again more often, pain in my chest, headaches for no reason, and palpitations. (March-May 2021) The rehab doctor refused to take a look at my lungs.
  • The lung specialist found Asthma (July 2021), and I got a prescription for Foster. The pain in my chest disappeared, so did the stuffiness I experienced during the night. Stuffiness, so heavy that it made me wonder each evening if I would wake up in the morning. It felt like a 15 months before, so I thought it was stress.
  • A cold (September 2021), coughing up and sneezing blood for 5 days. It stopped, and because of my former experiences, I didn’t call a doctor. I wanted to mention this in the visit with the lung specialist (October 2021). Sadly, the conversation mainly went about the rehabilitation doctor I met in April 2021.
  • Chestpain (lungs/heart) is coming back after a small walk. I have to make stops in my daily walk from 2km.

Is it possible that Covid-19 influences my blood, which causes the same effect as the AIDS virus is affecting my immune system? And does Covid-19 interfere with my blood functions? Are blood clots or a changed blood balance causing the fluctuation of symptoms? Has the virus changed my DNA?

  • sight
  • hearing
  • taste
  • smell
  • muscle power and loss of feeling
  • muscle pain
  • breathing (lungs)
  • palpitations (heart)
  • digestion problems
  • menstrual problems
  • headaches (never had them before Covid-19)
  • strange sensation in my head
  • increased sleep
  • brain fog
  • wordfinding problems, from going blank to try to scrabble the words together. In English and in my mothertongue. Or using the wrong words.
  • trouble putting things in a timeline
  • trouble remebering, being disoriented
  • overwelm, getting lost in the supermarket
  • visual problems, blurry vision, sometimes after a headache. I need readingglasses and if I don’t experience visionproblems I can read without them.
  • problems with my hearing (tinitus, helicoptersound in my ear, sometimes trouble hearing or sensitive for sounds)
  • Not able to remember what I’ve read
  • Not able to summarize or react to a tekst
  • bleeding
  • I add more symptoms, as soon as I remember them.

Written by

Daphne

DAPHNE IN STOCKINGS is a writer with a blog telling her story about surviving blood clots, living with FVL, blood thinners, and stockings. And coping with Covid-19 twice in 2020. She's telling her story about building resilience in a physical and mental struggle to heal.