Last Wednesday was my first Clotiversary from my third DVT. I’m still so happy I survived three times! ❤️ A little celebration in the same week as I had an appointment with my Hematologist.
This time everything went okay, traveling to the hospital by public transport. I told her about the pain I developed since September 2020 and the struggle to get the stockings adjusted. I took all my strength to focus during the conversation. I was strong when I was there; tears started rolling when I was waiting for the bus to go home. Going on all the way home and after I got home.
My Hematologist told me I had developed post-thrombotic syndrome in my leg. That’s why my leg stays painful. And I sometimes wake up in the middle of the night because my leg is hurting. I was still hoping the pain would solve; now I know it stays for life.
A stent is not going to cause more relief for now but is an option for later. So blood-thinners and stockings for life. I need to speak about this with the rehabilitation specialist I’m going to see on April 19th. Another issue to learn to cope with.
Deep down, I knew this could be the case, but I hoped I would get rid of the pain. In the afternoon I took a long bath and listened to music, to relax. After my afternoon nap, I calmed down.
As terrifying as the thought of the post-thrombotic syndrome makes me right now, all the “what if’s” aren’t going to help. It’s an unhealthy way of overthinking. I try to stay in the moment and cope with the things I need to cope with right now. Being thankful for my body’s work has done for me so far, time to be nice back and give myself all the love possible.
