{"id":2098,"date":"2021-11-11T15:33:53","date_gmt":"2021-11-11T15:33:53","guid":{"rendered":"https:\/\/www.daphneinstockings.com\/mystory\/daphne-in-stockings\/?p=2098"},"modified":"2022-08-23T17:09:02","modified_gmt":"2022-08-23T17:09:02","slug":"hope","status":"publish","type":"post","link":"https:\/\/www.daphneinstockings.com\/mystory\/daphne-in-stockings\/doctors\/hope\/","title":{"rendered":"Hope"},"content":{"rendered":"<p>Would my blood be the answer to all the problems I&#8217;m experiencing? Are blood clots connecting the dots to heal from Long Covid?<\/p><p>Let&#8217;s start with a sum up: (I might change it later because summarizing is one of the hardest things suffering Long Covid, because memorizing my thoughts and memory, has functioned differently ever since.)<\/p><ul><li>I fell because the feeling in my right leg had disappeared. Now I realize why the two women who found me reacted hysterically and wanted to call an ambulance\u2014the look on the doctor&#8217;s face in Prague&#8230;<\/li><li>I had thinners from the doctor in Prague because I have FVL. My GP and a doctor in the hospital told me to stop. Unfortunately, I got thrombosis for the third time.<\/li><li>Just after the diagnosis, I had massive and frightening menstrual bleeding using DOAC&#8217;s. A change of meds (Acenocoumarol) followed this.<\/li><li>Heavier menstrual bleedings and changed periods ever since. Sometimes with a lot, of big clots like after giving birth.\u00a0<\/li><li>Pain in my chest, headaches for no reason, and palpitations. My GP and Haematologist told me it was stress, without further examination.<\/li><li>An INR that the Thrombosis service couldn&#8217;t get stable.<\/li><li>Immense pain in my calf (September 2020), diagnosed as PTS (March 2021)<\/li><li>A strange feeling in my head (November 2020), like a balloon, snapped and fluid came out, followed by an enormous headache and hours of sleep. My GP gave me a prescription to see a Neurologist 2 months later. So I didn&#8217;t worry.<\/li><li>A few days before Christmas 2020. Backpain was so severe I was at an angle of 90 degrees, not able to move. Heavy painkillers and in bed for two weeks. The third week when I was phasing out on the meds, I was feeling sick. Headaches, fever, feeling like I got the flu. I couldn&#8217;t test, because I was positive in November 2020. And it also could have been the meds. <\/li><li>Brain fog got worse, see the symptoms in the list below.<\/li><li>Again more often, pain in my chest, headaches for no reason, and palpitations. (March-May 2021) The rehab doctor refused to take a look at my lungs.<\/li><li>The lung specialist found Asthma (July 2021), and I got a prescription for Foster. The pain in my chest disappeared, so did the stuffiness I experienced during the night. Stuffiness was so heavy that it made me wonder each evening if I would wake up in the morning. It felt like 15 months before, so I thought it was stress.<\/li><li>A cold (September 2021), coughing up and sneezing blood for 5 days. It stopped, and because of my former experiences, I didn&#8217;t call a doctor. I wanted to mention this in the visit with the lung specialist (October 2021). Sadly, the conversation mainly went about the rehabilitation doctor I met in April 2021.<\/li><li>Chest pain (lungs\/heart) is coming back after a small walk. I have to make stops in my daily walk from 2 km.<\/li><\/ul><p>Is it possible that Covid-19 influences my blood, which causes the same effect as the AIDS virus is affecting my immune system? And does Covid-19 interfere with my blood functions? Are blood clots or a changed blood balance causing the fluctuation of symptoms? Has the virus changed my DNA?<\/p><ul><li>visual problems; blurry vision, sometimes followed by a headache. I use reading glasses and if I don&#8217;t experience vision problems I can read without them.<\/li><li>problems with my hearing (tinnitus, helicopter sound in my ear, sometimes trouble hearing or sensitivity to sounds)<\/li><li>taste; sometimes it is back for a while, mostly it&#8217;s gone or in very light<\/li><li>smell; mostly gone, sometimes I smell phantom smells or it is misformed<\/li><li>loss of muscle power, not able to train in a continuous mode or walk for a &#8216;normal&#8217; period of time<\/li><li>loss of feeling in limbs, falling down, letting things fall out of my hands<\/li><li>muscle pain, cramps<\/li><li>breathing (lungs), stuffiness and pain in my shoulders, or the feeling of a tight band squeezing my chest together<\/li><li>palpitations (heart), not all the time, can be in rest and after activity<\/li><li>dizziness standing in line\/ standing still<\/li><li>digestion problems<\/li><li>menstrual problems, bleedings<\/li><li>headaches (never had them before Covid-19)<\/li><li>strange sensation in my head<\/li><li>increased sleep, tiredness, feeling like sleeping with my eyes open (like someone switched me off)<\/li><li>brain fog, trouble concentrating, and thinking (is better with tons of rest)<\/li><li>wordfinding problems, from going blank to trying to scrabble the words together, or using the wrong or non-existing words. In English and in my mother tongue.<\/li><li>being disoriented; losing my way, going the wrong way, being too late or too early, overwhelm in crowded places<\/li><li>overwhelm; getting lost in the supermarket getting overwhelmed by colors, products, people, and noises<\/li><li>not able to remember what I&#8217;ve read or have seen on television<\/li><li>not able to summarize or react to a text because the information comes in differently<\/li><li>trouble with overview; trouble putting things in a timeline, trouble filling in a form<\/li><li>planning my days is impossible, I enjoy the things that I can do within my abilities<\/li><li>no access to information that I usually had access to in my brain. I can&#8217;t bring things up and sometimes information comes up without reason.<\/li><li>Loss of hair and canker sores in my mouth (same when I was recovering from EBV when I was a teenager)<\/li><li>fevers when I am exhausted (only when I cross my boundaries)<\/li><li>I add more symptoms when I remember them.<\/li><\/ul><p>We now live in August 2022, I am on an inflammatory diet and using supplements after listening to interviews\/podcasts with Anthony William and Dr. Daniel G. Amen. <br>The first two patients with inflamed brains have been seen in Dutch research and Dr. Daniel G. Amen has seen over a hundred patients with inflamed brains. Let&#8217;s see if this brings me results&#8230; \ud83e\udd1e\ud83c\udffc<\/p>","protected":false},"excerpt":{"rendered":"<p>Would my blood be the answer to all the problems &hellip; <\/p>\n","protected":false},"author":1,"featured_media":2099,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[440,15,374,438,437],"tags":[466,463,462,470,11,458,459,464,468,471,413,469,467,460,461,465],"featured_image_src":"https:\/\/www.daphneinstockings.com\/wp-content\/uploads\/2021\/11\/Are-blood-clots-connecting-the-dots-to-heal-from-Long-Covid.png","featured_image_src_square":"https:\/\/www.daphneinstockings.com\/wp-content\/uploads\/2021\/11\/Are-blood-clots-connecting-the-dots-to-heal-from-Long-Covid.png","author_info":{"display_name":"Daphne","author_link":"https:\/\/www.daphneinstockings.com\/mystory\/daphne-in-stockings\/author\/admin\/"},"category_info":"<a href=\"https:\/\/www.daphneinstockings.com\/mystory\/daphne-in-stockings\/category\/adaptive-habits\/\" rel=\"category tag\">Adaptive habits<\/a>, <a href=\"https:\/\/www.daphneinstockings.com\/mystory\/daphne-in-stockings\/category\/doctors\/\" rel=\"category tag\">Doctors<\/a>, <a href=\"https:\/\/www.daphneinstockings.com\/mystory\/daphne-in-stockings\/category\/hospital\/\" rel=\"category tag\">Hospital<\/a>, <a href=\"https:\/\/www.daphneinstockings.com\/mystory\/daphne-in-stockings\/category\/limitless-self\/\" rel=\"category tag\">Limitless self<\/a>, <a href=\"https:\/\/www.daphneinstockings.com\/mystory\/daphne-in-stockings\/category\/reframing-my-narrative\/\" rel=\"category tag\">Reframing my narrative<\/a>","tags_info":"<a href=\"https:\/\/www.daphneinstockings.com\/mystory\/daphne-in-stockings\/tag\/bleedings\/\" rel=\"tag\">bleedings<\/a>, <a href=\"https:\/\/www.daphneinstockings.com\/mystory\/daphne-in-stockings\/tag\/blood\/\" rel=\"tag\">blood<\/a>, <a href=\"https:\/\/www.daphneinstockings.com\/mystory\/daphne-in-stockings\/tag\/bloodclots\/\" rel=\"tag\">bloodclots<\/a>, <a href=\"https:\/\/www.daphneinstockings.com\/mystory\/daphne-in-stockings\/tag\/disbelief\/\" rel=\"tag\">disbelief<\/a>, <a href=\"https:\/\/www.daphneinstockings.com\/mystory\/daphne-in-stockings\/tag\/doctors\/\" rel=\"tag\">Doctors<\/a>, <a href=\"https:\/\/www.daphneinstockings.com\/mystory\/daphne-in-stockings\/tag\/dvt-2\/\" rel=\"tag\">Dvt<\/a>, <a href=\"https:\/\/www.daphneinstockings.com\/mystory\/daphne-in-stockings\/tag\/fvl\/\" rel=\"tag\">FVL<\/a>, <a href=\"https:\/\/www.daphneinstockings.com\/mystory\/daphne-in-stockings\/tag\/gp-2\/\" rel=\"tag\">GP<\/a>, <a href=\"https:\/\/www.daphneinstockings.com\/mystory\/daphne-in-stockings\/tag\/headaches-2\/\" rel=\"tag\">headaches<\/a>, <a href=\"https:\/\/www.daphneinstockings.com\/mystory\/daphne-in-stockings\/tag\/hope\/\" rel=\"tag\">hope<\/a>, <a href=\"https:\/\/www.daphneinstockings.com\/mystory\/daphne-in-stockings\/tag\/long-covid-2\/\" rel=\"tag\">long covid<\/a>, <a href=\"https:\/\/www.daphneinstockings.com\/mystory\/daphne-in-stockings\/tag\/noworriesmate\/\" rel=\"tag\">noworriesmate<\/a>, <a href=\"https:\/\/www.daphneinstockings.com\/mystory\/daphne-in-stockings\/tag\/periods\/\" rel=\"tag\">periods<\/a>, <a href=\"https:\/\/www.daphneinstockings.com\/mystory\/daphne-in-stockings\/tag\/prague\/\" rel=\"tag\">Prague<\/a>, <a href=\"https:\/\/www.daphneinstockings.com\/mystory\/daphne-in-stockings\/tag\/specialists\/\" rel=\"tag\">specialists<\/a>, <a href=\"https:\/\/www.daphneinstockings.com\/mystory\/daphne-in-stockings\/tag\/stuffiness-2\/\" rel=\"tag\">stuffiness<\/a>","social_share_info":"<a data-share=\"facebook\" href=\"https:\/\/www.facebook.com\/sharer.php?u=https:\/\/www.daphneinstockings.com\/mystory\/daphne-in-stockings\/doctors\/hope\/\" class=\"tb-facebook-share social-share-default tb-social-share\" target=\"_blank\"><i class=\"fab fa-facebook-f\" aria-hidden=\"true\"><\/i><\/a><a data-share=\"twitter\" href=\"https:\/\/twitter.com\/share?url=https:\/\/www.daphneinstockings.com\/mystory\/daphne-in-stockings\/doctors\/hope\/\" class=\"tb-twiiter-share social-share-default tb-social-share\" target=\"_blank\"><i class=\"fab fa-twitter\" aria-hidden=\"true\"><\/i><\/a><a data-share=\"linkedin\" href=\"https:\/\/www.linkedin.com\/shareArticle?url=https:\/\/www.daphneinstockings.com\/mystory\/daphne-in-stockings\/doctors\/hope\/\" class=\"tb-linkedin-share social-share-default tb-social-share\" target=\"_blank\"><i class=\"fab fa-linkedin-in\" aria-hidden=\"true\"><\/i><\/a>","wordExcerpt_info":"<p><!-- wp:paragraph --><\/p>\n<p>Would my blood be the answer to all the problems I&#8217;m experiencing? Are blood clots connecting the dots to heal from Long Covid?<\/p>\n<p><!-- \/wp:paragraph --><\/p>\n<p><!-- wp:paragraph --><\/p>\n<p>Let&#8217;s start with a sum up: (I might change it later because summarizing is one of the hardest things suffering Long Covid, because memorizing my thoughts and memory, has functioned differently ever since.)<\/p>\n<p><!-- \/wp:paragraph --><\/p>\n<p><!-- wp:list --><\/p>\n<ul>\n<li>I fell because the feeling in my right leg had disappeared. Now I realize why the two women who found me reacted hysterically and wanted to call an ambulance\u2014the look on the doctor&#8217;s face in Prague&#8230;<\/li>\n<li>I had thinners from the doctor in Prague because I have FVL. My GP and a doctor in the hospital told me to stop. Unfortunately, I got thrombosis for the third time.<\/li>\n<li>Just after the diagnosis, I had massive and frightening menstrual bleeding using DOAC&#8217;s. A change of meds (Acenocoumarol) followed this.<\/li>\n<li>Heavier menstrual bleedings and changed periods ever since. Sometimes with a lot, of big clots like after giving birth.\u00a0<\/li>\n<li>Pain in my chest, headaches for no reason, and palpitations. My GP and Haematologist told me it was stress, without further examination.<\/li>\n<li>An INR that the Thrombosis service couldn&#8217;t get stable.<\/li>\n<li>Immense pain in my calf (September 2020), diagnosed as PTS (March 2021)<\/li>\n<li>A strange feeling in my head (November 2020), like a balloon, snapped and fluid came out, followed by an enormous headache and hours of sleep. My GP gave me a prescription to see a Neurologist 2 months later. So I didn&#8217;t worry.<\/li>\n<li>A few days before Christmas 2020. Backpain was so severe I was at an angle of 90 degrees, not able to move. Heavy painkillers and in bed for two weeks. The third week when I was phasing out on the meds, I was feeling sick. Headaches, fever, feeling like I got the flu. I couldn&#8217;t test, because I was positive in November 2020. And it also could have been the meds. <\/li>\n<li>Brain fog got worse, see the symptoms in the list below.<\/li>\n<li>Again more often, pain in my chest, headaches for no reason, and palpitations. (March-May 2021) The rehab doctor refused to take a look at my lungs.<\/li>\n<li>The lung specialist found Asthma (July 2021), and I got a prescription for Foster. The pain in my chest disappeared, so did the stuffiness I experienced during the night. Stuffiness was so heavy that it made me wonder each evening if I would wake up in the morning. It felt like 15 months before, so I thought it was stress.<\/li>\n<li>A cold (September 2021), coughing up and sneezing blood for 5 days. It stopped, and because of my former experiences, I didn&#8217;t call a doctor. I wanted to mention this in the visit with the lung specialist (October 2021). Sadly, the conversation mainly went about the rehabilitation doctor I met in April 2021.<\/li>\n<li>Chest pain (lungs\/heart) is coming back after a small walk. I have to make stops in my daily walk from 2 km.<\/li>\n<\/ul>\n<p><!-- \/wp:list --><\/p>\n<p><!-- wp:paragraph --><\/p>\n<p>Is it possible that Covid-19 influences my blood, which causes the same effect as the AIDS virus is affecting my immune system? And does Covid-19 interfere with my blood functions? Are blood clots or a changed blood balance causing the fluctuation of symptoms? Has the virus changed my DNA?<\/p>\n<p><!-- \/wp:paragraph --><\/p>\n<p><!-- wp:list --><\/p>\n<ul>\n<li>visual problems; blurry vision, sometimes followed by a headache. I use reading glasses and if I don&#8217;t experience vision problems I can read without them.<\/li>\n<li>problems with my hearing (tinnitus, helicopter sound in my ear, sometimes trouble hearing or sensitivity to sounds)<\/li>\n<li>taste; sometimes it is back for a while, mostly it&#8217;s gone or in very light<\/li>\n<li>smell; mostly gone, sometimes I smell phantom smells or it is misformed<\/li>\n<li>loss of muscle power, not able to train in a continuous mode or walk for a &#8216;normal&#8217; period of time<\/li>\n<li>loss of feeling in limbs, falling down, letting things fall out of my hands<\/li>\n<li>muscle pain, cramps<\/li>\n<li>breathing (lungs), stuffiness and pain in my shoulders, or the feeling of a tight band squeezing my chest together<\/li>\n<li>palpitations (heart), not all the time, can be in rest and after activity<\/li>\n<li>dizziness standing in line\/ standing still<\/li>\n<li>digestion problems<\/li>\n<li>menstrual problems, bleedings<\/li>\n<li>headaches (never had them before Covid-19)<\/li>\n<li>strange sensation in my head<\/li>\n<li>increased sleep, tiredness, feeling like sleeping with my eyes open (like someone switched me off)<\/li>\n<li>brain fog, trouble concentrating, and thinking (is better with tons of rest)<\/li>\n<li>wordfinding problems, from going blank to trying to scrabble the words together, or using the wrong or non-existing words. In English and in my mother tongue.<\/li>\n<li>being disoriented; losing my way, going the wrong way, being too late or too early, overwhelm in crowded places<\/li>\n<li>overwhelm; getting lost in the supermarket getting overwhelmed by colors, products, people, and noises<\/li>\n<li>not able to remember what I&#8217;ve read or have seen on television<\/li>\n<li>not able to summarize or react to a text because the information comes in differently<\/li>\n<li>trouble with overview; trouble putting things in a timeline, trouble filling in a form<\/li>\n<li>planning my days is impossible, I enjoy the things that I can do within my abilities<\/li>\n<li>no access to information that I usually had access to in my brain. I can&#8217;t bring things up and sometimes information comes up without reason.<\/li>\n<li>Loss of hair and canker sores in my mouth (same when I was recovering from EBV when I was a teenager)<\/li>\n<li>fevers when I am exhausted (only when I cross my boundaries)<\/li>\n<li>I add more symptoms when I remember them.<\/li>\n<\/ul>\n<p><!-- \/wp:list --><\/p>\n<p><!-- wp:paragraph --><\/p>\n<p>We now live in August 2022, I am on an inflammatory diet and using supplements after listening to interviews\/podcasts with Anthony William and Dr. Daniel G. Amen. <br \/>The first two patients with inflamed brains have been seen in Dutch research and Dr. Daniel G. Amen has seen over a hundred patients with inflamed brains. Let&#8217;s see if this brings me results&#8230; \ud83e\udd1e\ud83c\udffc<\/p>\n<p><!-- \/wp:paragraph --><\/p>\n","comment_info":"0","_links":{"self":[{"href":"https:\/\/www.daphneinstockings.com\/mystory\/daphne-in-stockings\/wp-json\/wp\/v2\/posts\/2098"}],"collection":[{"href":"https:\/\/www.daphneinstockings.com\/mystory\/daphne-in-stockings\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.daphneinstockings.com\/mystory\/daphne-in-stockings\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.daphneinstockings.com\/mystory\/daphne-in-stockings\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.daphneinstockings.com\/mystory\/daphne-in-stockings\/wp-json\/wp\/v2\/comments?post=2098"}],"version-history":[{"count":17,"href":"https:\/\/www.daphneinstockings.com\/mystory\/daphne-in-stockings\/wp-json\/wp\/v2\/posts\/2098\/revisions"}],"predecessor-version":[{"id":2322,"href":"https:\/\/www.daphneinstockings.com\/mystory\/daphne-in-stockings\/wp-json\/wp\/v2\/posts\/2098\/revisions\/2322"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.daphneinstockings.com\/mystory\/daphne-in-stockings\/wp-json\/wp\/v2\/media\/2099"}],"wp:attachment":[{"href":"https:\/\/www.daphneinstockings.com\/mystory\/daphne-in-stockings\/wp-json\/wp\/v2\/media?parent=2098"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.daphneinstockings.com\/mystory\/daphne-in-stockings\/wp-json\/wp\/v2\/categories?post=2098"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.daphneinstockings.com\/mystory\/daphne-in-stockings\/wp-json\/wp\/v2\/tags?post=2098"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}